Tuesday, 30 November 2010
Dad passed away 29/11/2010
My husband and I were called late Saturday night by Leeds General Infirmary. A doctor said that they needed to discuss options for dad because he had deteriorated significantly during the day. When we arrived we were told that dad was dying and this was irreversible. The doctor suggested that dad was placed on the Liverpool Care Pathway. This is where all palliative care is removed and no blood tests or observations are done. All the patient receives is very strong opiates to control any pain, and mouth care. This care programme is scheduled to last for four days. My dad passed away yesterday, day 2 of the care programme. We went to Leeds today to try and get the death certificate but we couldn't because there has been a huge death toll with the cold weather. We are going back tomorrow. We have instructed undertakers to make preliminary arrangements for the funeral but a date has yet to be set.
Tuesday, 23 November 2010
Up date on dad
Firstly dad did not have his operation till Monday the 15th November even though he fell on Saturday the 13th but over the weekend they had other priorities. This was good because dad had is 85th birthday and i did not have to worry if he would get through the anasthetic, The operation went well dad did not have anesthetic so that was great, dad was just confised when James and i visited him.
Had a couple of ups and downs with dad being dehydrated and hallucinating having to be put on drips which is not good for dad he pulls anything out that does not belong to him so causes himself problems but with him being confused its hard to get him to understand.
Since then dad has had to have a blood transfussion, i was made aware that dad had a very rare blood group and they had to send to the National blood transfusion centre in Sheffield for it, after all that dad then starts to be sick through the night and its got blood in it so they need to investigate that but dad is not well enough for a gastroscopy at this minute in time so they are keeping a close eye on that.
We are then informed that dad has got a chest infection so when i said is it a chest infection or pneumonia i was tod pneumonia, so thay are now treating dad for that as well as having to keep him hydrated.
On my way to visit yesterday i received a call from a Dr from heamotology that wanted to meet with me so i said i was on my way so we met up with him. He told me that dad had protein in his blood but this was not something new its shown for a while, anyway i was told that this can usually be cancer but to find out 100% dad would need a bone marrow biopsy from his hip. Dad is far too ill for this so the dr was pleased that i was saying no because he thought it was far too much for dad to cope with now, as if this is correct then he would need chemo and dad is not up for this he is so weak and fragile. The Dr was glad that we were both singing from the same hymn sheet regarding dad's well being.
Had a couple of ups and downs with dad being dehydrated and hallucinating having to be put on drips which is not good for dad he pulls anything out that does not belong to him so causes himself problems but with him being confused its hard to get him to understand.
Since then dad has had to have a blood transfussion, i was made aware that dad had a very rare blood group and they had to send to the National blood transfusion centre in Sheffield for it, after all that dad then starts to be sick through the night and its got blood in it so they need to investigate that but dad is not well enough for a gastroscopy at this minute in time so they are keeping a close eye on that.
We are then informed that dad has got a chest infection so when i said is it a chest infection or pneumonia i was tod pneumonia, so thay are now treating dad for that as well as having to keep him hydrated.
On my way to visit yesterday i received a call from a Dr from heamotology that wanted to meet with me so i said i was on my way so we met up with him. He told me that dad had protein in his blood but this was not something new its shown for a while, anyway i was told that this can usually be cancer but to find out 100% dad would need a bone marrow biopsy from his hip. Dad is far too ill for this so the dr was pleased that i was saying no because he thought it was far too much for dad to cope with now, as if this is correct then he would need chemo and dad is not up for this he is so weak and fragile. The Dr was glad that we were both singing from the same hymn sheet regarding dad's well being.
Saturday, 13 November 2010
Got woken up this morning with a call from the nursing home saying dad had fallen.
I was woken to a call from the nursing home to say dad had fallen and was on his way to the Leeds General Infirmary. Dad's broken his hip, collar bone and got pain in his chest nurse said that they had put dad on the list for surgery tomoro but can not promise because if an emergency comes in dad may not go down till Monday.
When i saw him he was calling out with the pain and trying to pull out the catherter, the nurse said she would give him something for the pain but dad said he had been waitng ages so did not believe her.
She came back in about 15 mins and gave dad some morphine to help, within 20 mins he was at ease but moaning i spoke to the Dr about dad and how long the operation would take and he said 2 hours then he would go into recovery.
I do not think that dad is strong enough to go through an operation.of any kind.
When i saw him he was calling out with the pain and trying to pull out the catherter, the nurse said she would give him something for the pain but dad said he had been waitng ages so did not believe her.
She came back in about 15 mins and gave dad some morphine to help, within 20 mins he was at ease but moaning i spoke to the Dr about dad and how long the operation would take and he said 2 hours then he would go into recovery.
I do not think that dad is strong enough to go through an operation.of any kind.
Friday, 12 November 2010
Last Supper and farewell to my son and his family.
Today we will be taking our Ste and his family to the airport and saying good bye its going to be a hard day and emotions are going to be all over the place, but i want him and his family to be happy even though i will miss them all very much, this photo was just before they went through me saying bye to Joshua.
Today we also found out that dad had got a place in a new home in leeds 9, and will be moving in straight away so will keep you updated. Thankyou for following my blog, hope everyone is well take care luv Paula.
Thursday, 11 November 2010
Dad's been seen by psychiatrist and they have now decided on !
Well the last couple of weeks have been a bit of a mess, dad was seen by a psychiatric nurse who said dad should not be at Highfield as they do not have EMI nursing registration, so we should look for somewhere that does offer that so dad would remain on a one to one care basis from 6pm till 8am.
Dr Clarke said he would send another person to check dad out and do a second assessment, this took place on Thursady the 4th November and feed back was definitely that dad would have to move into a EMI nursing home, because dad did have vascular dementia and global Alzheimers and they gave the home a script for dad to be given sleeping tablets for 7 days, both my sister and i said no to sleepers due to what we had been told by Dr Fuller regarding dad been high risk of falls.
2 EMI nursing homes have been out to check on dad and we are awaiting feedback from them, i have just spoken with the social worker and been told that if they decline then we will need to look at other places, this means that this may not be as easy as one thinks. Got feed back and both homes had refused dad for different reasons, so then was given names of EMI nursing homes that supposingly had places and spent 2 days running round looking, to find when i arrived that they did not have places anyway i did get to look at 4 2 of which i would not have touched.
So dad was assessed yesterday by one and will be assessed again today by the other one so i hope that we get a yes otherwise we could be left with him been placed somewhere i do not want, so i will keep my fingers crossed. And due to all the above times gone by and its tomoro my son his partner and my grandson leave to start a new life in New Zealand and to be honest i was hoping to make the best of the time they have been staying with us, but this did not happen i will miss them all so much and am dreading tomoro.
Thanks for reading and sorry for not updating more often take care luv Paula
Dr Clarke said he would send another person to check dad out and do a second assessment, this took place on Thursady the 4th November and feed back was definitely that dad would have to move into a EMI nursing home, because dad did have vascular dementia and global Alzheimers and they gave the home a script for dad to be given sleeping tablets for 7 days, both my sister and i said no to sleepers due to what we had been told by Dr Fuller regarding dad been high risk of falls.
2 EMI nursing homes have been out to check on dad and we are awaiting feedback from them, i have just spoken with the social worker and been told that if they decline then we will need to look at other places, this means that this may not be as easy as one thinks. Got feed back and both homes had refused dad for different reasons, so then was given names of EMI nursing homes that supposingly had places and spent 2 days running round looking, to find when i arrived that they did not have places anyway i did get to look at 4 2 of which i would not have touched.
So dad was assessed yesterday by one and will be assessed again today by the other one so i hope that we get a yes otherwise we could be left with him been placed somewhere i do not want, so i will keep my fingers crossed. And due to all the above times gone by and its tomoro my son his partner and my grandson leave to start a new life in New Zealand and to be honest i was hoping to make the best of the time they have been staying with us, but this did not happen i will miss them all so much and am dreading tomoro.
Thanks for reading and sorry for not updating more often take care luv Paula
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